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SWAN UK (syndromes without a name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK. It is run by the charity Genetic Alliance UK.
Autism Support Crawley is a voluntary carer-led charity supporting fellow unpaid carers, caring for someone with an Autistic mind, with or without a diagnosis across all of Sussex, Brighton and Hove, Surrey, Kent, and Hampshire borders.
IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs and disabilities (SEND).
Amaze is a charity that gives information, advice and support to families of children and young people with special educational needs and disabilities (SEND) in Brighton & Hove and Sussex. We also support young people with SEND up to 25. Some of our services are only available in specific areas – check out the specific services information for parent carers and young people.
ERIC exists to give every child and teenager with a bowel or bladder condition the support they deserve to enjoy a life free from shame, isolation and fear.
Family Fund is the UK’s largest charity providing grants for families raising disabled or seriously ill children and young people. Our mission is to provide items and services to all low-income families in the UK raising disabled or seriously ill children, that could not otherwise afford or access, and that help improve their quality of life, realise their rights, and remove some of the barriers they face.